top of page
  • Writer's pictureNate Methot

Lloyd's Fantasy

Back in February, I mailed a small vial of saliva to be tested. My doctor informed me I could find out if my ALS was caused by a faulty gene. There’s a higher chance in younger pALS, they told me.

It wasn’t a big thing to me; I didn’t see any changes on the horizon either way. If they discovered a faulty gene, there were potentially some experimental treatments, I was told with some semblance of hope. And I would know what caused all of this, but that didn’t feel like any reason to celebrate.

In the introduction of the testing, an unfamiliar neurologist asked if I had children. If there were any genetic deficiency, it could be passed on to them; they’d have to be tested as well. No children, we told them. A positive result would quickly slam the door on my Lloyd Christmas one-in-a-million mindset toward kids.

Months after sending the sample and registering on the website, I’d heard nothing. Something recently jogged my memory and I checked in, saw a “Pending” status, and clicked the “Request Results” button. About a month later, on September 2nd, I received an email. Negative. No answers. But Lloyd’s fantasy lives on.

162 views0 comments

Recent Posts

See All

Human beings need 1) Safety; 2) Satisfaction; and 3) Connection. What does that mean for people living with ALS? I recently learned what I’m sure is a very basic anthropological lesson on the universa

Anyone with a serious illness wants to go back to the time before it began. (Or to come through the other side with a new lease on life; the best of both worlds.) Of course. To experience yourself and

bottom of page